Personalised Health and Care 2020: A Summary


The National Information Board have published a document titled ‘Personalised Health and Care 2020: Using Data and Technology to Transform Outcomes for Patients and Citizens – a Framework for Action’. The following is my summary of the Framework for Action which was also covered in previous posts. The interested reader is directed to the original document which is cited below.

In the first section the drivers for action are identified from the 5 Year Forward View. The three main drivers are described as

  1. The health and wellbeing gap
  2. The care and quality gap
  3. The funding and efficiency gap

In the second section, the authors provide evidence to support the direction of the framework. Although there are examples from healthcare, many of the examples reference changes that have been achieved in other industries. There are several themes that permeate this section of the document – skill transfer, standardisation, logistics and personalised transactions.

In the third section the authors provide a brief overview of the current situation. They note that 96% of General Practices have electronic patient records. The authors note that the sharing of information between different clinical record systems is an important area to develop. They also note that there is the potential to develop further benefits from the infrastructure already in place. Distinctions are also made between the technology infrastructures of formal and informal care structures.

In the fourth section, the authors identify collaborative changes that are required:-

  • personalised care
  • developing new care models and integrating services
  • effective service management access
  • workforce development

In the fifth section, the authors look at how to enable the right health and care choices. They give a number of examples from health and social care. The authors also outline the roadmap to supporting people with their choices including but not limited to enabling people to view their care records by 2018, a single point of access for services, a systematic approach to regulating technology and a mobile care record.

In the sixth section of the Framework for Action, the authors outline the roadmap for supporting care professionals and carers with data, knowledge and information.

The authors focus on interoperability including SNOMED CT®, the NHS number and standards for transfer of care. The authors also outline a roadmap for consultation on improving access to care records for carers and related bodies. The authors also emphasise the development of mobile technologies and the integration of local government resources with NHS resources. A number of case studies are provided.

In the seventh section of the Framework for Action, the authors outline the roadmap for making care quality transparent. The authors focus on MyNHS (MyNHS, 2017). They also identify an intention to extend MyNHS.

In the eighth section of the document, the authors discuss information governance. The steps towards improving information governance include the appointment of Dame Fiona Caldicott as the National Data Guardian for Health and Care and with the intention of placing this on a statutory footing. The authors also discuss a roadmap for managing information.

In the 9th section the authors discuss innovation, growth and life-saving treatments. Developments in genomics are a key focus as are developments in IT infrastructure. There is also a discussion of technology funds, ‘test bed sites’, health and care ‘new towns’ and international and commercial collaboration.

In the 10th section the authors look at how to support professionals to make the best use of data and technology. The roadmap includes HEE & HSCIC (now NHS Digital) developing a knowledge and skills framework, a consortium led training programme for senior leadership teams, a panel of suppliers, a revised definition of the informatics profession, the development of a federation for informatics, a core curriculum for professional regulation and proposals for Code 4 Health.

In the 11th section, the authors look at increasing value. The objectives include reevaluation of the GPSOC contract, NIB publication of roadmap aligning national programmes with the framework, the facilitation of buying consortia, security and interoperability standards and DH/NIB consultation on national investment in the digital care infrastructure.

In the 12th section of the Framework for Action, the authors look at how the framework will be achieved. This is divided into three sections – local support, national support and principles of development. At a local level there is an emphasis on innovation using various drivers for change. Nationally the achievement of the framework objectives will be facilitated through appointed roles and oversight by the National Information Board. Finally there is a discussion about further plans to support the framework which involve more fundamental aspects of the health technology infrastructure.

Citations, accessed 11.5.17, accessed 22.5.17

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Disclaimer: The comments made here represent the opinions of the author and do not represent the profession or any body/organisation. The comments made here are not meant as a source of medical advice and those seeking medical advice are advised to consult with their own doctor. The author is not responsible for the contents of any external sites that are linked to in this blog.

Conflicts of Interest: *For potential conflicts of interest please see the About section


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